Look everyone, we got a facelift! Hats off to my friend Alison, who made my
awesome new logo and design. Isn't it cute? Note the bee (for Thora, whose
middle name is Bea) and the dragonfly for Freyja. The dragonfly represents PCH
to us because kids with PCH have a malformation of their cerebellum that takes
the shape of a dragonfly on their MRI scans.
In other news, this blog has been nominated
for a 2017 Liebster Award. I would like to thank Hope For
Katherine Belle for their support and for nominating me for
this fantastic award. Here’s how the process works:
Bloggers are nominated by their peers. Once they are nominated, they look for blogs
that speak to them and have less than 200 readers per month, and then they
nominate those bloggers – paying it forward. Upon nomination, The Liebster
Award Nominees are asked to answer 10 questions.
Q: Can you tell
readers about yourself and your blog?
A: I'm a mom of two girls, one
with special needs. Native New Yorker. Introvert. Writer. Adoptee. Married to
my best friend. Not your typical mom, wife or anything else.
I've always kept a diary or a journal. Writing
helps me make sense of the world around me, and I use it as a means to
understand myself and my feelings. When my first daughter was born, I thought
I'd never have the time to write again. A friend told me that she started a
blog about her kids to keep her friends and family involved and up to date with
everything the kids were doing, and I thought that was a great idea. So the
blog was well underway before Freyja was born. I wrote about her delays and my
growing concerns and then about her diagnosis. But it's not a special needs
blog; rather it's a blog that chronicles a very unique family from my point of
surprising you’ve learned from starting your own blog?
A: I have solved a lot of problems through
writing. I have been able to process feelings I didn't even realize I had and
work through major challenges. So it's more than a snapshot of what's happening
in our lives. I am very real, very open. I've learned a lot about myself just
by putting myself out there and letting myself be vulnerable.
Q: Do you have periods
when you want to abandon your blog, and if so, what brings you back?
A: I wish that I
had more time to write, to update the blog more with all the amazing,
beautiful, crazy things that happen in our lives that I want the world to know
about and maybe even to turn this blog into something more, like a book. But I
don't know how to market myself, my writing or my blog. I don't know how to
take that next step. When I don't make the time to update more often or even
really think through what next steps could look like, I get frustrated with
myself and feel like I should give up. And when I do write, I am very honest in
these pages. I sometimes think about the people who might read what I say and I
get shy and embarrassed of my tendency to overshare. I do occasionally think
about abandoning ship. But I haven't yet; thankfully that always passes.
Q: Where would you go
if you could travel anywhere in the world?
A: I love to
travel. When I'm traveling for pleasure I either want to be in a new place,
seeing as much of it and learning as much about it as I can, or I want to be in
the same exact place we go to every year at the very tip of Cape Cod,
Massachusetts, with an iced coffee in one hand and a book in the other.
Q: Do you have a
A: Not really. I
admire my friend Brenna at Suburban
Snapshots and my friend Jesse at JesseAnneO. They are both such wonderful
writers with an important message and a sense of humor. I also have several
friends who are writers or in publishing (or both) and I have learned a great
deal from them. My friend Missy Church, poet and author of Church,
has been a constant source of inspiration to me for many years.
Q: What was your
proudest achievement (life in general)?
A: "This is
the true joy in life, the being used for a purpose recognized by yourself as a
mighty one; the being a force of nature instead of a feverish, selfish little
clod of ailments and grievances complaining that the world will not devote
itself to making you happy. I am of the opinion that my life belongs to the
whole community, and as long as I live it is my privilege to do for it whatever
I can. I want to be thoroughly used up when I die, for the harder I work, the
more I live. I rejoice in life for its own sake. Life is no "brief
candle" for me. It is a sort of splendid torch which I have got hold of
for the moment, and I want to make it burn as brightly as possible before
handing it on to future generations." George Bernard Shaw
Q: What do you think
your blog says about you?
A: I think it
says, "here's a wildly imperfect grownup who has no idea what she's doing,
figuring it all out a day at a time."
Q: Where do you see
your blog in five years?
A: It's hard to
say. I write from the heart. I have always written and I will continue to write
as long as I live. Where and how I can't be sure. I hope that someday I will
have more time to dedicate to my writing. But I don't know what kinds of turns
this blog will take because we don't have a sense of Freyja's prognosis long
term, and I don't know how my children will feel about me writing so publicly
about them as they get older. I could see myself turning excerpts from our
lives into a book at some point, but I don't even know how to begin to make
Q: How do you relieve
stress and unwind?
A: I spend every
moment I can with my family. I also love to cook, read, walk, and do yoga.
Q: What one piece of advice would you
give other new bloggers? A: Just keep
Q: What is your
A: The Phantom Tollbooth by Norton Juster
Q: What is your
A: Decaf cold brew coffee that I make at
home and drink with unsweetened vanilla almond milk over ice.
Q: What gets you out
of bed in the morning?
A: I don't need an alarm clock. The
pitter patter of an early bird's feet on the stairs wakes me up every morning
"in the sixes" (as she puts it) like clockwork.
Q: What is the last
thing you do at night before you close your eyes?
A: Kiss Johnny goodnight.
Now it’s my turn to nominate some fellow
bloggers! All of the ones I selected are written by parents of special needs
kiddos, most of them are people I've met PCH kids like Freyja. With this I hope
to raise awareness of PCH and the severity of Freyja's neurological
Upon accepting this nomination, it becomes
your turn to write your Liebster Award 2017 acceptance and nominate some fellow
deserving blogs. In your post you’ll need to follow these Liebster Award rules: